Comprehensive Insights into Multiple Sclerosis: Patient Perspectives on Disease Progression and Mental Health Management (PP-07)

Introduction: This poster presents a study on patient perspectives regarding multiple sclerosis (MS), a progressive neurodegenerative disease that results in irreversible neural damage and physical disabilities. MS impacts both physical and mental health, causing symptoms such as fatigue, mobility issues, cognitive impairments, and mood disorders. The study aims to uncover patient priorities, challenges, and experiences with healthcare communication and treatment strategies.
Method: The study collected data through a combination of surveys, interviews, and extensive literature reviews. Surveys focused on patients' experiences at diagnosis, ongoing disease management, and the impact of invisible symptoms. Interviews provided qualitative insights into patient priorities and the effectiveness of healthcare communication. Literature reviews offered additional context on common mental health conditions in MS and best practices for their management.
Results: Key findings reveal that patients experience significant anxiety and decreased motivation due to overwhelming information and treatment options at diagnosis. Many patients expressed the need for more comprehensive education about MS, particularly its impact on mental and physical health. Survey results showed diverse patient priorities, necessitating personalized care strategies. Invisible symptoms like fatigue, cognitive impairment, and mood disorders are major challenges often overlooked in clinical settings. Effective communication from a multidisciplinary team is crucial for managing these symptoms and supporting patients throughout their disease journey. Mental health issues, including depression and anxiety, are prevalent and exacerbated by the stress of living with MS, intensified by the COVID-19 pandemic. Beneficial management strategies identified include robust social support networks, cognitive behavioral therapy, mindfulness-based practices, and appropriate pharmacotherapy.
Conclusion: The study underscores the critical need for personalized, patient-centered communication and education in managing MS. Addressing the unique challenges faced by each patient, particularly invisible symptoms, can significantly enhance their quality of life and patient satisfaction.